It is Congenital Heart Defects Awareness week and so I thought I would try and do a blog post a day about it. That was until my internet went down for the past two days! So this is the post that should have gone up on Monday… I am extremely sorry!
To start the week off I thought I would explain a little bit about what Congenital Heart Defects (CHD) mean, and how it affects people’s lives.
1 in 100 babies are born with CHD, and according to The Children’s Heart Foundation, this equates to over 40,000 babies being born every year with a heart defect in America alone. This means every 15 minutes a child is born with a heart condition and as frightening and sad as it may be, 20% of these children will not see their first birthday.
CHDs range from babies being born with half a heart, to babies needing pacemakers, or even having a problem with one of their heart’s arteries. CHD is anything that is an abnormality with your heart’s structure and is something that you are born with. Although it is often seen as a childhood condition, it is important to stress that Congenital Heart Defects are for life. You are constantly bobbing to and from hospital and, considering on how serious your condition is, many heart babies grow up needing further surgery in later life.
Some CHDs can be detected before birth, however most are found out once the baby is born. A lot of CHDs go undetected though and can seriously effect someone’s adulthood if the condition is not discovered – they could even lead to death.
It is one of the most common birth defects and yet is one of the most underfunded for research, and this needs to change.
The reason I’m writing about CHD is because through no fault of their own, so many people have little or no knowledge about the condition whatsoever. Something needs to be done about this and more awareness must be raised.
Throughout the week I will be posting information about CHD, I will be sharing my own and other survivor’s stories so please stay tuned and keep reading to find out more. Being a Heart Warrior myself, CHD is something that, as cliché as this sounds, I hold extremely close to my heart. It has played a huge part in my life and has shaped the person I am today.
Please share my blog and please raise awareness of the disease. I cannot get over to you how important it is that more people learn about this condition.
The more awareness raised, the more lives saved.
Let’s fight CHD a heartbeat at a time x